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Artikel

Publieke waarden en het gebruik van genetische gegevens

Tijdschrift Justitiële verkenningen, Aflevering 1 2021
Trefwoorden technological advances, sequencing DNA, internationalization, commercial use, public values
Auteurs Petra Verhoef, Yayouk Willems en Marc Groenen
SamenvattingAuteursinformatie

    Three developments – technological advances in sequencing DNA data, the booming market for commercial DNA tests, and internationalization of collecting and sharing DNA data – are accelerating the use of DNA data worldwide. The authors discuss the impact of the increase in international and commercial use of DNA data and the way it puts public values (like privacy, autonomy, fairness) under pressure. When collecting, analyzing, and translating DNA data, privacy should be guarded, genetic discrimination has to be prevented, digital citizenship could be strengthened, and responsibilities for those applying DNA data should be strongly defined. By doing so, we can thrive for a future in which we make valuable use of DNA data.


Petra Verhoef
Dr. ir. P. Verhoef is themacoördinator bij het Rathenau Instituut. Zij en haar team werken aan verschillende onderwerpen rondom technologie voor gezondheid en landbouw.

Yayouk Willems
Dr. Y.E. Willems is onderzoeker bij het Rathenau Instituut, en zij is gepromoveerd bij het Nederlands Tweelingen Register.

Marc Groenen
M. Groenen MSc werkte tot april 2021 bij het Rathenau Instituut als onderzoeker. Momenteel werkt hij als onderzoeker bij Wageningen Food Safety Research.
Artikel

Genealogische DNA-databanken: consequenties van het delen van ons DNA

Tijdschrift Justitiële verkenningen, Aflevering 1 2021
Trefwoorden direct-to-consumer (DTC) genetic testing, spreading of DNA data, risks, function creep, ownership of DNA
Auteurs Nico Kaptein
SamenvattingAuteursinformatie

    This article aims to contribute to the public debate on the consequences and risks of the spreading of DNA data related to direct-to-consumer (DTC) genetic testing. Market developments drive DTC companies to find new business models. As a result of mergers and acquisitions and of the developments of new products and services, DNA data are often used differently than what they were originally collected for. Since DTC DNA data are not protected as well as health-related data generally are, it is hard to keep track of these data. This is partly due to legal and ethical issues such as unclarity of who owns DNA and problems with informed consent. Risks are identified with regards to privacy, information security, the right not to know, (un)equal opportunities, and national security. The author calls for an investment in knowledge and awareness in order to allow for a fair balance between opportunity and risk of DTC DNA products and services.


Nico Kaptein
Drs. N. Kaptein is directeur van advies- en onderzoeksbureau Maruda.
Artikel

Empirisch-juridisch onderzoek – toekomstmuziek of werkelijkheid?

Tijdschrift Justitiële verkenningen, Aflevering 6 2016
Trefwoorden empirical legal studies, law in action, law in the real world, evidence-based law
Auteurs Dr. N.A. Elbers
SamenvattingAuteursinformatie

    Empirical Legal Studies (ELS) are studies investigating the law in the real world, using empirical methods. Internationally, ELS is on the rise. However, not much is known about what is being done around ELS in the Netherlands. This article describes the results of a systematic review, investigating how many PhD researchers who defended their thesis at a Dutch law faculty in 2015 have collected empirical data, what topic they investigated, which method they used and what background they have. The findings are that 33% of the PhD theses could be labelled as ELS. The majority of ELS were conducted by researchers who have a social science degree. Some of the (only few) lawyers collecting empirical data did not aim to conduct ELS, even though their research questions were very empirical. It is concluded that more empirical education and research funding are needed to stimulate lawyers to conduct more ELS.


Dr. N.A. Elbers
Dr. Nieke Elbers is postdoc-onderzoeker bij het Nederlands Studiecentrum Criminaliteit en Rechtshandhaving (NSCR) en projectleider voor de stimuleringsactie Empirical Legal Studies. Zij is als sociale wetenschapper (MSc (neuro)psychologie) gepromoveerd bij de rechtenfaculteit van de Vrije Universiteit Amsterdam (afdeling privaatrecht).
Artikel

Reflecties op het verantwoord gebruik van kunstmatige intelligentie

Tijdschrift Justitiële verkenningen, Aflevering 3 2016
Trefwoorden Artificial Intelligence, Ethical dilemma’s, Designing process, Restrictions and controls, Human rights
Auteurs Dr. M.V. Dignum en Prof.dr. J. van den Hoven
SamenvattingAuteursinformatie

    The potential perils of robots and other forms of artificial intelligence (AI) have been a subject for discussion since the 1950s. Nevertheless it seems that society is still not prepared for the great impact of the rapid advancement of AI in the last decennium and the many ethical dilemmas involved. How can moral, social and legal values be integrated in the designing process of AI technologies? Is it imaginable that these AI systems would ever be considered as ethical entities? How to control these systems? The authors argue that we should not only analyze these problems, but also reflect on ethics itself. AI has the potential to change the way we live and work. But it is important to introduce restrictions and controls to guarantee our freedom, autonomy and fundamental human rights.


Dr. M.V. Dignum
Dr. Virginia Dignum is als Associate Professor verbonden aan de Faculteit voor Techniek, Bestuur en Management van de Technische Universiteit Delft.

Prof.dr. J. van den Hoven
Prof. dr. Jeroen van den Hoven is als hoogleraar Ethiek verbonden aan de Faculteit voor Techniek, Bestuur en Management van de Technische Universiteit Delft.
Artikel

Pot, crack en Obama’s ‘third way’

Liberalisering van drugsbeleid in de Verenigde Staten?

Tijdschrift Justitiële verkenningen, Aflevering 8 2013
Auteurs I. Haen Marshall
SamenvattingAuteursinformatie

    This essay describes the most important recent events in the field of American drugs legislation covering the liberalization of cannabis policies in several states as well as the reduction of penalties for the possession of crack at the federal level. These developments are situated in a broader context of a complicated and big country with plenty of room for extreme moral views and a very punitive justice policy that targets Blacks and Latino’s much more than the white middle class. The disproportionate impact of the punitive drugs legislation is an important driving force behind the trend towards liberalization, next to the high costs of maintaining an overcrowded prison system.


I. Haen Marshall
Ineke Haen Marshall, PhD is Professor bij het Department of Sociology & Anthropology and School of Criminology and Criminal Justice van de Northeastern University in Boston.
Artikel

De bescherming van klokkenluiders: recente lessen uit Australië

Tijdschrift Justitiële verkenningen, Aflevering 7 2013
Trefwoorden whistleblower protection, Australian legislation, human rights, anti-retaliation model, public sector integrity
Auteurs A.J. Brown
SamenvattingAuteursinformatie

    This article seeks to aid understanding of the ways in which different policy purposes, approaches and legal options can be combined in the design of better legislation, using Australia’s recently passed Public Interest Disclosure Act 2013. It provides a guide to key elements of the new legislation, as an example of legislative development taking place over a long period, informed by different trends. In particular, it is one of the first national laws to seek to integrate divergent approaches to the ‘anti-retaliation’ model of whistleblower protection, including its place in the employment law system, it sets new standards for the role of ‘public whistleblowing’ in such a regime, and provides new responses on basic questions of coverage, including which individuals are able to gain the benefit of the legislation. This provides lessons as to how different legal approaches might be better integrated, in pursuit of a clearer understanding of the interface between whistleblowing and other integrity reforms.


A.J. Brown
Prof. A.J. Brown is hoogleraar Public Policy and Law bij het Centre for Governance & Public Policy van de Griffith University in Australië. E-mail: A.J.Brown@griffith.edu.au.
Titel

Achter de schermen: De ervaringen van slachtoffers van identiteitsroof

Tijdschrift Justitiële verkenningen, Aflevering 07 2006
Trefwoorden Slachtoffer, Identiteit, Politie, Credit card, Privacy, Bank, Fout, Krediet, Schuld, Medewerker
Auteurs Meulen, N.S. van der

Meulen, N.S. van der
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